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Rare Disease Day
Results: 254

#	Item
71	The Spirit and History of Rare Disease Day Anja Helm, Senior Manager of Relations with Patient Organisations, EURORDIS[removed] Add to Reading List Source URL: www.eurordis.org Language: English - Date: 2014-09-30 06:57:27 Patient Science Health European Organization for Rare Diseases Rare Disease Day Rare disease
72	Regional Conference on Rare Diseases, 02-03 DEC 2014, Prague Rare disease (RD) activities in Poland Add to Reading List Source URL: ec.europa.eu Language: English - Date: 2014-12-08 11:13:51 Rare Disease Day Health Science Medicine Orphanet Rare disease EUROCAT
73	Council Recommendation of 8 June 2009 on an action in the field of rare diseases Add to Reading List Source URL: ec.europa.eu Language: English - Date: 2014-12-08 11:13:49 Orphan drug Rare diseases Public health Chronic Genetic Alliance UK Rare Disease Day Health Health economics Epidemiology
74	9:30 AM Welcome and Plans for the Day Bryan Luce, PhD, MBA, Chief Science Officer, PCORI Marshall L. Summar, MD, Chair, Advisory Panel on Rare Disease, PCORI Add to Reading List Source URL: www.pcori.org Language: English - Date: 2015-01-09 11:01:10 Rare disease Medical genetics Medicine Cancer research Epidemiology
75	High School Curriculum for Rare Disease Day Introduction Thank you for using this short-term curriculum about rare diseases for high school biology and health classes. This curriculum is intended to be used on Rare Disea Add to Reading List Source URL: rarediseaseday.us Language: English - Date: 2014-11-24 15:43:42 Education Critical pedagogy Educational psychology Philosophy of education Epidemiology Rare disease Rare Disease Day
76	Introduction to Role of Advisory Panels Bryan Luce, PhD, MBA, Chief Science Officer, PCORI Rare Diseases Roundtable Objectives for the Day Add to Reading List Source URL: www.pcori.org Language: English - Date: 2014-09-10 09:50:26 Research Medicine Nursing research National Institutes of Health Rare disease Clinical trial Outcomes research RDCRN Contact Registry Epidemiology Health Clinical research
77	7th European Conference on Rare Diseases & Orphan Products 8-10 May 2014, Andel’s Hotel, Berlin, Germany The Rare Disease Puzzle: Bringing the Picture to Life In the past two decades we have identified the pieces that Add to Reading List Source URL: www.rare-diseases.eu Language: English - Date: 2014-12-18 09:26:22 Epidemiology Rare disease European Organization for Rare Diseases Rare Disease Day Orphan drug European Medicines Agency Orphanet Actelion Canadian Organization for Rare Disorders Health Science Pharmaceutical sciences
78	BELGIUM EUROPLAN NATIONAL CONFERENCE FINAL REPORT 28 February 2014, Brussels Add to Reading List Source URL: www.eurordis.org Language: English - Date: 2014-10-24 08:29:00 Medical terms Rare disease Rare Disease Day Orphan drug Chronic European Organization for Rare Diseases National Institutes of Health Disease Orphanet Health Medicine Epidemiology
79	PDF Document Add to Reading List Source URL: www.raredisorders.ca Language: English - Date: 2015-01-07 15:10:04 Rare disease Rare Disease Day Chronic Patient advocacy Health care Canadian Organization for Rare Disorders European Organization for Rare Diseases Medicine Health Epidemiology
80	Microsoft PowerPoint - nishimura_120205 ICORD Final Session [互換モード] Add to Reading List Source URL: icord.se Language: English - Date: 2012-07-24 08:33:12 Rare Disease Day Rare disease